These documents should be edited with your specific
information.
Families from all MAGIC
divisions are encouraged to walk with us.
Central Precocious Puberty (CPP)
Chronic Renal Insufficiency
Congenital Adrenal Hyperplasia
Gential & Reproductive Anomalies in
Children
Growth Hormone Deficiency in
Children
Growth Hormone Deficiency in Adults
McCune-Albright Syndrome
Panhypopituitarism/Tumors
Rare Disorders
Russell-Silver Syndrome (RSS)
Septo Optic Dysplasia/Optic Nerve
Hypoplasia
Small For Gestational Age (SGA)
Thyroid Disorders
Turner Syndrome
RSS/SGA
Education & Research Fund.
We have 300+ RSS/SGA families that are members of MAGIC. In
2004, 10% of our families (32) "walked" and raised a huge
total of $50,600.82 – 50% being donated to MAGIC for
convention expenses and 50% being donated to the RSS/SGA
Education & Research Fund.
Goal for 2005: 75 participating families to raise $75,000
total
Where does the money we raise go?
50% of the walkathon monies will be put in our RSS/SGA
Education & Research fund (see below) and 50% will be
used to cover costs for Convention 2006.
What are the goals of the RSS/SGA Education & Research
Fund?
To cover distribution costs of our upcoming RSS/SGA
Guidebook (we have already raised the money for production
& printing). We would like to raise enough funds to
allow us to provide Guidebooks free to all members of MAGIC
and do a direct mail campaign to pediatric endocrinologists.
Reduced price copies will be available to
non-members.
To provide a financial grant allowing Dr. Harbison to
hire additional statistician and writer hours, so she may
complete two RSS/SGA studies for publication by the end of
2006. (We already have raised $10,000 towards this grant; we
would like to provide a $20,000 grant.)
To cover all costs associated with a joint study/survey
of RSS/SGA children sponsored by MAGIC and being authored by
Drs. Harbison, Stanhope and Toumba. The physicians will
donate their time. We will publish at least one article from
this research.
